That's right NO treatment for me.
I went to the hospital yesterday for my appointment with my oncologist and to have treatment. (I thought) When I went into the appointment room I first met with my nurse practitioner who told me that they were trying to get my CT Scan results (I had the CT Scan that past Monday). So we started going over my last 3 weeks and then she told me that I was going to be meeting with a Nurse Practitioner that specialized in pain management. I have been increasing my Neurotin and got to a level that it started affecting my cognitive abilities. I wanted off the meds or to try something different because I don't want to be living my life like a zombie. So that appointment was about switching to Lyrica instead.
During that appointment my oncologist popped her head in the room and said, "I have your CT Scan results." And then she said, "Everything looks great. Everything is stable. There are NO new tumors. This is great news." Then I started to cry. Everything is stable. OMG. It really is working. Finally something is working and I am doing great. This is all that went through my head. It had been a long week waiting to get the results. I choose to wait it out and have the conversation in person with my doctor. I am so glad I did!!!! I finished up the appointment with the other nurse practitioner.
My oncologist came back into the room and then proceeded to say, "I think it might be best to start doing your treatments every 6 weeks instead." "OK", I said. She said, "I don't want the neuropathy to become permanent and you are doing so well let's give your body a break." I said, "OK". She said, "Let's not do this treatment." I said, "What". She said, "Go home". I said, "What". She said, "Skip this treatment". I said, "Oh My God". She said, "I know I know your schedule." I said, "Yes my schedule." We all started to laugh!!!! She said, "It will be OK just skip every other treatment in your schedule." I said, "OK but what about the next scan and what if it starts to grow again and and and????" I was really concerned and scarred at this point. But then I realized how supported I am, how loved I am and how everyone in my life is holding for me to be "A Miracle". Especially me. This means that I will need to stop treatment eventually and continue living a normal life. I know that it is not totally gone right now but it will be and this is the next step in the process. So I went home.
And here I am updating my blog, by myself. This is all great news and I am so happy to have a week back to be able to play, work and be with my family on these sunny days of summer. Of course with lots of sunscreen! Hahaha. OK not that funny but very true.
Thank You to everyone that was supporting me this treatment and who I had to cancel.
My dear friend Max from Boston who comes every treatment to support and love not just me but my family as well. I am so sorry you can't get your hair cut this time. :) Thank you for all that you do. I will miss seeing you.
Thank you to all the neighbors that were going to deliver food.
Thank you Susan for arranging it all each treatment and
to all the neighbors that continue to deliver food
month after month aftermonth, without any hesitation.
It makes a huge difference
in my recovery process, Thank You!
Thank you to my MSIA Family that comes to give me Prayer Communion each treatment cycle. Thank you Alice for being my
Guardian Angel and for arranging it
and supporting me the way that you do.
Thank you to my Village of Angels!!!
My treatment support, Jann for loving me
just the way that you do.
Rose Angel for your words of inspiration and that
lovely rose I get before each treatment.
House Cleaning Angels assisting me so that
my surroundings are clean and fresh.
Thank you to everyone loving, praying, supporting
and holding that I will be "A Miracle".
God Bless each and everyone of us today and always.
Until next time,
Light, love and laughter,